CODEBOOK V2018: Prospective Cohort Study of Kidney Disease in Children 7-28-2020 F13A - Abbreviated Follow-Up General History Form Start ____Field____ Section/ Column Len Format Variable Question Description Code ------ --- --------- ---------------- ------------ ------------------------------ ------------------------------ 1 6 6.0 CASEID A.1 Participant ID 100000= 100000 . . 699999= 699999 7 3 3.0 VISIT A.2 Visit # 000= 000 . . 990= 990 10 8 $ VERSGH A.3 Form version 09/01/04= 09/01/04 . . 12/31/18= 12/31/18 18 7 7.3 GHVISDAT A.4 Date of visit in duration of 0.000= 0.000 years year from the baseline visit . . 50.000= 50.000 years -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 25 3 $ GHINITL A.5 Initials of person completing Character form 28 2 2.0 ACCELVIS A.6 Accelerated visit 1= Yes 2= No -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 30 2 2.0 GHRELAT B.1 Relationship to participant 1= Mother in study 2= Father 3= Legal guardian 5= Self 4= Other -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 32 50 $ GHORELSP B.1.a Specify other relationship to Character participant 82 2 2.0 GHHGRADC C.1 Highest grade completed by 0= 0 participant . . 12= 12 -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 84 2 2.0 GHSCHOOL C.2 Participant's school 1= Yes 2= No -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 86 3 3.0 GHMISSDY C.3 Participant missed school r/t 0= 0 illness - days . . 90= 90 -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 89 2 2.0 GHINDIEP C.4 Participant has an 1= Yes individualized education plan 2= No -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 91 2 2.0 GH504PLN C.5 Participant has a 504 plan at 1= Yes school 2= No -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 93 2 2.0 GHRELABP D.1 Relationship between birth 1= Not married, living parents together 2= Married, living together 3= Married, separated 4= Widowed 5= Divorced 6= Never married, not living together -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 95 2 2.0 GHDAYSPH D.2 Days per week participant in 4= 4 primary household . . 7= 7 -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 97 2 2.0 GHPEPLPH D.3 Number of people in primary 1= 1 household . . 15= 15 -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 99 2 2.0 GHADLTPH D.4 Number of adults in primary 1= 1 household . . 10= 10 -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 101 2 2.0 GHBMOMPH D.5.a Primary household - birth 1= YES mother 2= NO -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 103 2 2.0 GHBDADPH D.5.b Primary household - birth 1= YES father 2= NO -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 105 2 2.0 GHAMOMPH D.5.c Primary household - step/ 1= YES adoptive mother 2= NO -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 107 2 2.0 GHADADPH D.5.d Primary household - step/ 1= YES adoptive father 2= NO -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 109 2 2.0 GHPARTPH D.5.e Primary household - 1= YES participant 2= NO -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 111 2 2.0 GHOTHRPH D.5.e Primary household - other 1= YES 2= NO -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 113 25 $ GHSPOAPH D.5.e.i Specify other adult living in Character primary household 138 2 2.0 GHCHLDPH OldD.5 Old: Number of people under 1= 1 18 in primary household . . 10= 10 -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 140 2 2.0 GHADSMOK D.6 Adults in household smoke 1= Yes 2= No -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 142 2 2.0 GHTOTINC D.9 Total income of primary 1= <=$6000/yr, <=$500/mo, household members <=$115/wk 2= $6001-$12000/yr, $501- $1000/mo, $116-$231/wk 3= $12001-$18000/yr, $1001- $1500/mo, $232-$346/wk 4= $18001-$24000/yr, $1501- $2000/mo, $347-$461/wk 5= $24001-$30000/yr, $2001- $2500/mo, $462-$577/wk 6= $30001-$36000/yr, $2501- $3000/mo, $578-$692/wk 7= $36001-$75000/yr, $3001- $6250/mo, $693-$1442/wk 8= >$75000/yr, >$6250/mo, >$1442/wk -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 144 2 2.0 GHMOMEMP D.9.a Current employment status of 1= Working full-time (35 mother hours or more per week) 2= Working part-time (less than 35 hours per week) 3= Unemployed but seeking work 4= Unemployed not seeking work 5= Student 6= Retired 7= Disability -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 146 2 2.0 GHMSFEMP D.9.a.i Mother is self-employed 1= Yes 2= No -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 148 2 2.0 GHDADEMP D.9.b Current employment status of 1= Working full-time (35 father hours or more per week) 2= Working part-time (less than 35 hours per week) 3= Unemployed but seeking work 4= Unemployed not seeking work 5= Student 6= Retired 7= Disability -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 150 2 2.0 GHDSFEMP D.9.b.i Father is self-employed 1= Yes 2= No -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 152 2 2.0 GHCHDEMP OldD.9.c Old: Current employment 1= Working full-time (35 status of child hours or more per week) 2= Working part-time (less than 35 hours per week) 3= Unemployed but seeking work 4= Unemployed not seeking work 5= Student 6= Retired 7= Disability -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 154 2 2.0 GHPESWFT D.9.c Participant current 1= YES employment status - working 2= NO full-time -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 156 2 2.0 GHPESWPT D.9.c Participant current 1= YES employment status - working 2= NO part-time -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 158 2 2.0 GHPESDIS D.9.c Participant current 1= YES employment status - 2= NO disability income -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 160 2 2.0 GHPESSTD D.9.c Participant current 1= YES employment status - student 2= NO -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 162 2 2.0 GHPESUSW D.9.c Participant current 1= YES employment status - 2= NO unemployed seeking work -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 164 2 2.0 GHPESUNS D.9.c Participant current 1= YES employment status - 2= NO unemployed not seeking work -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 166 2 2.0 GHCSFEMP D.9.c.i Participant is self-employed 1= Yes 2= No -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 168 5 $ GHCURZIP D.10 Current zip code of Character participant's primary household 173 2 2.0 GHCZM1YR D.11 Participant has lived at 1= Yes current zip more than 1 year 2= No -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 175 2 2.0 GHCZMTHS D.11.a Number of months participant 1= 1 has lived at current zip . . 11= 11 -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 177 5 $ GHPRVZIP D.11.b Previous zip code of Character participant's primary household 182 4 4.1 GHPZNYRS D.11.c Number of years participant 0.1= 0.1 lived at previous zip . . 20.0= 20.0 -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 186 4 4.1 GHCZNYRS D.12 Number of years participant 0.1= 0.1 has lived at current zip . . 20.0= 20.0 -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 190 2 2.0 GHPZIPSM D.13 Participant zip and parent/ 1= Yes guardian zip same 2= No -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 192 5 $ GHPGCZIP D.14 Current zip of parent/guardian Character 197 2 2.0 GHPGZIPY D.15 Number of years parent/ 1= 1 guardian lived at current zip . . 20= 20 -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 199 2 2.0 GHPGZIPM D.15 Number of months parent/ 1= 1 guardian lived at current zip . . 11= 11 -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 201 2 2.0 GHLVOLD5 F.1 Participant was older than 5 1= Yes at first visit 2= No -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 203 2 2.0 GHOLDER5 F.2 Participant is older than 5 1= Yes 2= No -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 205 2 2.0 GHCRBRFD F.2.b Participant is currently 1= Yes breast fed 2= No -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 207 2 2.0 GHWASBRF F.2.c Participant was breast fed 1= Yes 2= No -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 209 2 2.0 GHWEANBR F.2.d Age at which participant 1= 1 weaned from breast . . 48= 48 -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 211 2 2.0 GHWEANYM F.2.d Age weaned from breast - 1= year(s) years months weeks days 2= months 3= week(s) 4= days -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 213 2 2.0 GHCRBOTL F.3 Participant is currently 1= Yes bottle fed 2= No -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 215 2 2.0 GHWASBTL F.3.a Participant was bottle fed 1= Yes 2= No -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 217 2 2.0 GHWEANBT F.3.b Age at which participant 1= 1 weaned from bottle . . 48= 48 -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 219 2 2.0 GHWNDBYM F.3.b Age weaned from bottle - 1= year(s) years months weeks days 2= months 3= week(s) 4= days -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 221 2 2.0 GHLEAKUR F.4 Participant has wetness or 1= Yes leaks urine in the past year 2= No -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 223 2 2.0 GHWETDAY F.4.a Participant is wet during day 1= Yes in the past year 2= No -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 225 2 2.0 GHWETNGT F.4.b Participant is wet during 1= Yes night in the past year 2= No -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 227 2 2.0 GHCTHBLD F.4.c Participant catheterizes 1= Yes bladder in the past year 2= No -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 229 2 2.0 GHCTHURE F.4.c.i Participant catheterizes 1= Yes bladder through the urethra 2= No in the past year -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 231 2 2.0 GHCTHSTM F.4.c.ii Participant catheterizes 1= Yes bladder through a stoma in 2= No the past year -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 233 2 2.0 GHLVTTRN F.5 Participant was toilet 1= Yes trained at first visit 2= No -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 235 2 2.0 GHCRTTRN F.5.a Participant is currently 1= Yes toilet trained 2= No -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 237 2 2.0 GHAGTTRN F.5.b Age at which participant 1= 1 toilet trained . . 18= 18 -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 239 2 2.0 GHBEDWET F.5.c Bed wetting after toilet 1= Yes training 2= No -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 241 2 2.0 GHBWSTIL F.5.c.i Bed wetting still occurs 1= Yes 2= No -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 243 2 2.0 GHAGBWET F.5.c.ii Age until which bed wetting 1= 1 occured . . 48= 48 -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 245 2 2.0 GHBWETYM F.5.c.ii Age bed-wetting stopped - 1= years years months 2= months -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 247 2 2.0 GHMDRSBW F.5.c.iii Medical reasons caused bed 1= Yes wetting 2= No -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 249 2 2.0 GHBDSOIL F.5.d Bed soiling after toilet 1= Yes training 2= No -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 251 2 2.0 GHBSSTIL F.5.d.i Bed soiling still occurs 1= Yes 2= No -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 253 2 2.0 GHAGBSOL F.5.d.ii Age until which bed soiling 1= 1 occured . . 48= 48 -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 255 2 2.0 GHBSOLYM F.5.d.ii Age bed-soiling stopped - 1= years years months 2= months -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 257 2 2.0 GHMDRSBS F.5.d.iii Medical reasons caused bed 1= Yes soiling 2= No -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 259 7 7.3 GHREVDAT G.1 Date of review by study 0.000= 0.000 years coordinator in duration of . year from the baseline visit . 50.000= 50.000 years -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 266 3 $ GHRVINIT G.2 Initials of coordinator Character reviewing form 269 2 2.0 GHFADMIN G.3 Form administration 1= Interviewer-Assisted 2= Self-Administered 3= Both -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 271 1 $ ESTAT Edit status A.0 D= Dirty C= Clean P= Pending 272 6 $ VERSION Version number of data P01= Version 01 . . P99= Version 99