CODEBOOK V2020.1: Prospective Cohort Study of Kidney Disease in Children, 17 Jan 2020 7-29-2020 MEDSUMMARY_FULL: Medication and Supplement Use Summary File (full) Start ____Field____ Section/ Column Len Format Variable Question Description Code ------ --- --------- -------------------------------- ------------ ------------------------------ ------------------------------ 1 6 6.0 CASEID A.1 Participant ID 100000= 100000 . . 699999= 699999 7 5 4.0 VISIT A.2 Visit # 00= 00 . . 130= 130 12 7 7.3 MSVISDAT A.4 Date of visit in duration of 0.000= 0.000 years year from the baseline visit . . 50.000= 50.000 years 99.999= date after cut-off yr -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 19 8 7.0 med_code summary file drug code 10100= ACE Inhibitor 10200= ARB 10300= Beta Blocker 10400= Alpha Blocker 10500= Alpha/Beta Blocker 10600= Calcium Channel Blocker 10700= Centrally Acting Alpha- 2 Agonist 10800= Direct Vasodialator 10901= Diuretic, Loop 10902= Diuretic, Potassium- sparing 10903= Diuretic, Thiazides 10999= Diuretic, Other 11000= Combination Antihypertensive Med 11100= Other Antihypertensive Med 20100= antibiotic 20200= anti-viral 20300= anti=fungal 29900= antibiotics, other (OLD) 30101= ESA, Erythropoietin 30102= ESA, Darbepoetin alfa 30199= ESA, other 30200= Iron supplement 39900= Other Anemia Medication 40100= Immunosuppressive, Corticosteroid 40200= Immunosuppressive, antineoplastic/ chemotherapeutic agents 49900= immunosuppressive, other 50000= Growth Hormone 60100= Asthma/Allergy, Inhaled/intranasal corticosteroids 60200= Asthma/Allergy, antihistamine 60301= Asthma/Allergy, short- acting B2-agonist 60399= Asthma/Allergy, other bronchodilator 69900= Asthma/Allergy, other med 70100= Antidepressants 70200= CNS stimulants 70300= Antipsychotic 70400= sleep medication 79900= mood/behavior med, other 80000= Lipid Lowering Medications 90000= Seizure/Antiepileptic Med 100100= Antiemetic and GI motility agents 100200= Laxatives and stool softeners 100301= Antacid, H2-receptor blocker 100302= Antacid, Proton Pump inhibitor 100399= Antacid, other 100400= antidiarrheals 100501= Alkalinizing agent, Sodium Bicarb 100502= Alkalizing Agent, Citrate and Citric acid 109900= Digestive sys med, other 110100= Bladder medication 120100= Phosphate binder 120200= Potassium binder 129900= Phosphate/Potassium Binders, other 130101= Multivitamin, Nephro- vite/Nephrocaps/Nephro 130102= Vitamin/mineral supplement 130103= Fluoride 130199= Multivitamin, other 130200= Calcium/Vitamin D Supplement (OLD) 130201= Vitamin D, active 130202= Vitamin D, inactive 130300= Herbal Supplement 130400= Misc Electrolyte/ vitamin/mineral Supplement (OLD) 130401= Electrolyte Replacement 130402= Cysteamine 130500= Amino Acid Supplement 130600= Caloric nutritional supplement 130700= Fish oils 139900= Dietary Supplement, other 140100= insulin and oral hypoglycemics 140200= Thyroid replacement 150000= Xanthine Oxidase Inhibitor 160100= Contraceptives (birth control) 160200= Progesterone therapy (appetite stimulant) 160301= Estrogen therapy 160302= Testosterone therapy 170100= Analgesics, Paracetamol/ Acetominophen 170200= Analgesics, NSAIDS (aspirin, ibuprofen, naproxen) 170300= Analgesics, opiate (narcotics) 170900= Analgesics, other 990101= Analgesics, Ibuprophen (NSAID) (OLD) 990199= Anagesics, Aspirin/ Acetaminophen (OLD) 999900= Other medication/ supplement 999999= unknown medication -1= NA (Skipped) 27 7 7.0 MSDRCODE B.1b Drug code (from meds.data) 0100= 0100 . . 9999= 9999 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 34 4 3.0 MSADMIN B.1c Administration route 1= oral 2= injection 6= nasogastric tube 14= G-tube/button 7= per rectal 3= inhalation 4= intranasal 9= sublingual 5= intravenous 8= subcutaneous injection 12= intramuscular injection 13= intradermal injection 10= transdermal 11= topical 15= otic (to ear) 16= ophthalmologic (to eye) 98= other -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 38 35 $ MSADMNSP B.1.c Specify other method of Character administration 73 3 3.0 MSFORM B.1d Form of drug 1= Pill/Tablet/Patch/Powder 2= Drop 3= Inhaler/Spray 4= Nebulizer 5= Liquid (syrup/gel/cream/ lotion/injections) 6= Rectal Formulation -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 76 3 3.0 MSDRPSDL B.1.d.1 Delivery location for drops 1= right 2= left 3= both 99= other -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 79 9 9.3 DOSE Medication dose per 0.020= 0.020 administration, mg . (ANTIHYPERTENSIVE RX ONLY) . 2000= 2000 -9= missing -1= not available (for antihypertensive rx only) 88 7 7.3 DLYFREQ Number of medication 1= x1 per day administrations per day . (ANTIHYPERTENSIVE RX ONLY) . 6= x6 per day 0.5= every other day 0.429= x3 per week 0.286= x2 per week 0.143= x1 per week 0.071= x1 per 2 weeks 0.048= x1 per 3 weeks 0.033= X1 per month -9= missing -1= not available (for antihypertensive rx only) 95 9 9.3 DLYDOSE Daily medication dose, mg/day 0.014= 0.014 (ANTIHYPERTENSIVE RX ONLY) . . 4000= 4000 -9= missing -1= not available (for antihypertensive rx only) 104 3 3.0 DOSEFLAG Calculated daily medication 1= Yes, exceeds max value dose (DLYDOSE, mg/day) 0= No, within guideline range exceeds maximum published -9 or blank= missing (Micromedex) guidelines value -1= not applicable (for antihypertensive rx only) 107 8 8.2 MSVOLUME B.1e Volume of medication dose 0.00= 0.00 . . 999.00= 999.00 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 115 4 3.0 MSVLUNIT B.1.e Units for volume of 1= mL/cc medication dose 2= L 3= drop 4= puff/ nebulizer 5= suppository 6= grams 99= other -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 119 35 $ MSVLUNSP B.1.e Specify units for volume of Character medication dose 154 11 11.3 MSCONDSE B.1f Concentration dose of 0.000= 0.000 medication . . 999.999= 999.999 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 165 4 3.0 MSMSRUN B.1.f Measuring unit for 1= mcg concentration of medication 2= mg 3= g 4= % 5= units 99= other -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 169 35 $ MSMSRUSP B.1.f.i Specify measuring unit for Character concentration of medication 204 5 5.0 MSCONVOL B.1.f Concentration volume of 0= 0 medication . . 999= 999 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 209 4 3.0 MSVOLMUN B.1.f Volume unit for concentration 1= mL or cc of medication 2= L 3= gm 4= per actuation (spray/puff) 99= other -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 213 35 $ MSVOLUSP B.1.f.i Specify volume unit for Character concentration of medication 248 9 9.2 MSMDDOSE B.2 Dose of medication 0.00= 0.00 . . 5000.00= 5000.00 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 257 3 3.0 MSMDUNIT B.3 Units for dose 1= mg 2= mcg 3= ml/cc 4= tsp 5= tbsp 6= oz 7= drop 8= spray/inhaler 9= vitamins 10= g 11= % 98= other -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 260 36 $35. MSUNITSP B.3 Specify other units of Character medication 296 3 3.0 MSMDFREQ B.5 Frequency 1= q4 (every 4 hours) 2= q6 (every 6 hours or 4 times/day) 3= q8/tid (every 8 hours or 3 times/day) 4= q12/bid (every 12 hours or twice/day) 5= q24/qday (every day or once/day) 6= qod (every other day) 10= tiweek (3 times/week) 14= biweek (2 times/week) 7= qweek (every week) 11= q2week (every 2 weeks) 12= q3week (every 3 weeks) 13= qmonth (every month) 15= 2 or 3 times/week 16= less than 2 times/week 9= PRN (as needed) 8= other -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 299 36 $35. MSFREQSP B.5 Specify other frequency of Character medication 335 3 3.0 MSMEDRXD B.6 Drug is a prescribed 1= Yes medication 2= No -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 338 4 4.0 MSTLMNTH B.7 Number of times taken in last 0= 0 30 days . . 180= 180 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 342 3 3.0 MSMSDS30 B.8 Missed dose in past 30 days 1= Yes 2= No 99= N/A -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 345 3 3.0 MSMDRXD B.9 Drug taken as prescribed in 1= Yes past 7 days 2= No 99= N/A -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 348 3 3.0 MSTAKE7D C.1 Times took drug in past 7 days 0= 0 . . 99= 99 -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 351 3 3.0 MSMISS7D C.2 Times missed taking drug in 0= 0 past 7 days . . 99= 99 -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 354 3 3.0 MSREFUSE C.2.a Times missed taking drug in 0= 0 past 7 days due to refusal . . 99= 99 -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 357 3 3.0 MSBOTHER C.3 Drug bothers child 1= Never 2= Sometimes 3= Often 4= Always -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 360 3 3.0 MSHWHELP C.4 Drug helps child 1= Very well 2= Somewhat 3= Not at All -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 363 3 3.0 MSDRSEFF C.5.a Medication causes side effects 0= Never 1= Sometimes 2= A lot -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 366 3 3.0 MSDRRMBR C.5.b Hard to remember to give drug 0= Never 1= Sometimes 2= A lot -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 369 3 3.0 MSDRPHRM C.5.c Hard to get to pharmacy for 0= Never medication 1= Sometimes 2= A lot -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 372 3 3.0 MSDROPEN C.5.d Hard to open container 0= Never 1= Sometimes 2= A lot -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 375 3 3.0 MSDRRFIL C.5.e Hard to get refill on time 0= Never 1= Sometimes 2= A lot -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 378 3 3.0 MSDRWKND C.5.f Hard to remember on weekends 0= Never 1= Sometimes 2= A lot -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 381 3 3.0 MSDRHPAY C.5.g Hard to pay for medication 0= Never 1= Sometimes 2= A lot -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 384 3 3.0 MSDRTSTB C.5.h Medication tastes bad 0= Never 1= Sometimes 2= A lot -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 387 3 3.0 MSDRHRTS C.5.i Medication hurts/is painful 0= Never 1= Sometimes 2= A lot -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 390 3 3.0 restrict_med_collect Restricted medication 1= Yes, restricted collection on PFU01 0 or blank= no, not restricted (transplant-related only) 393 6 $ VERSION Version number of data P01= Version 01 . . P99= Version 99