CODEBOOK
V2018: Prospective Cohort Study of Kidney Disease in Children 7-29-2020
PFU01 - Post-CKiD Study Phone/In-Person Follow-Up Interview
Start ____Field____ Section/
Column Len Format Variable Question Description Code
------ --- --------- ---------------- ------------ ------------------------------ ------------------------------
1 6 6.0 CASEID A.0 Participant ID 100000= 100000
.
.
699999= 699999
7 3 3.0 VISIT A.0 Old: Visit # 000= 000
.
.
990= 990
10 2 2.0 PFPIPN A.0 PIP # 00= 00
.
.
10= 10
12 3 $ PFINITL A.0 Initials of person completing Character
form
15 7 7.3 PFFCMPDT A.0 Date form completed in 0.000= 0.000 years
duration of year from the .
baseline visit .
50.000= 50.000 years
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
22 8 $ VERSPF A.0 Form version 04/01/11= 04/01/11
.
.
12/31/18= 12/31/18
30 2 2.0 PFFCOMBY A.0 Person completing form 1= Child/young adult
2= Parent or other adult
3= Both (Parent and Child/
young adult)
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
32 7 7.3 PFDTSTAT A.1 Date of status determination 0.000= 0.000 years
in duration of year from the .
baseline visit .
50.000= 50.000 years
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
39 2 2.0 PFVTLSTA A.2 Participant's vital status 1= Alive
2= *Deceased
3= Unknown
4= Alive/Contacted but
refused interview
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
41 7 7.3 PFDTEDTH A.3 Date of participant's death 0.000= 0.000 years
in duration of year from the .
baseline visit .
50.000= 50.000 years
-1= NA (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
48 2 2.0 PFCSEDTH A.3.i Cause of death 01= Pericarditis (incl
Cardiac Tamponade)
02= Myocardial Infarction,
Acute
03= Cerebrovascular
04= Embolism
05= GI Hemorrhage
06= Hemorrhage (other than 03
or 05)
07= Pulmonary Infection
08= Septicemia
09= Viral Hepatitis
10= Infection (Other than 07,
08 or 09)
11= Hyperkalemia
12= Pancreatitis
13= Malignancy
14= Suicide
15= Accidental, Treatment
Related
16= Accidental, Not Treatment
Related
17= Artherosclerotic Heart
Disease
18= Cardiomyopathy
19= Cardiac Arrhythmia
20= Cardiac Arrest, Cause
Unknown
21= Valvular Heart Disease
22= Pulmonary Edema Due to
Exogenous Fluid
23= Cerebro-Vascular Accident
Including Intracranial
Hemorrhage
24= Ischemic Brain Damage/
Anoxic Enecephalopathy
25= Hemorrhage From Ruptured
Vascular Aneurysm
26= Hemorrhage From Surgery
27= Viral Infection
28= Viral Infection (Not 32
or 33)
29= Tuberculosis
30= AIDS
31= Other Infection
32= Hepatitis B
33= Other Viral Infection
34= Gastro-Intestinal
Hemorrhage
35= Seizures
36= Drug Overdose (Street
Drugs)
37= Drug Overdose (Not 14 or
36)
98= Unknown
99= Other Identified Cause of
Death
-1= NA (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
50 2 2.0 PFVSUHOM A.4 Vital status method of 1= YES
contact - home number 2= NO
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
52 2 2.0 PFVSUWRK A.4 Vital status method of 1= YES
contact - work number 2= NO
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
54 2 2.0 PFVSUFAM A.4 Vital status method of 1= YES
contact - family 2= NO
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
56 2 2.0 PFVSUSOC A.4 Vital status method of 1= YES
contact - social 2= NO
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
58 2 2.0 PFVSUOTH A.4 Vital status method of 1= YES
contact - other 2= NO
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
60 50 $ PFVSUOSP A.4 Specify other method of vital Character
status contact
110 7 7.3 PFDTFACT A.4.A4i Date of first attempt to 0.000= 0.000 years
contact in duration of year .
from the baseline visit .
50.000= 50.000 years
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
117 2 2.0 PFNTATCT A.4.A4ii Number of times attempted 0= 0
contact .
.
9= 9
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
119 7 7.3 PFDTLACT A.4.A4iii Date of last attempt to 0.000= 0.000 years
contact in duration of year .
from the baseline visit .
50.000= 50.000 years
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
126 2 2.0 PFPRSRPT A.5 Person reporting vital status 1= Participant
2= Mother
3= Father
4= Relative or Acquaintance
5= Other Method
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
128 50 $ PFPRRASP A.5.i Specify relative/acquaintance Character
reporting vital status
178 50 $ PFPROMSP A.5.ii Specify other method Character
reporting vital status
228 2 2.0 PFEVKDTP B.1 Child has had kidney 1= Yes
transplant 2= No
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
230 2 2.0 PFNMKDTP B.1a Number of kidney transplants 1= One
2= Two
3= Three or more
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
232 2 2.0 PFKTDONR B.1b Kidney transplant - type of 1= Living donor - Related
donor 2= Living donor - Not related
3= Deceased donor
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
234 2 2.0 PFKTLRDN OldB.1.a Old: Kidney transplant - 1= YES
living related donor 2= NO
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
236 2 2.0 PFKTLUDN OldB.1.a Old: Kidney transplant - 1= YES
living unrelated donor 2= NO
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
238 2 2.0 PFKTDCDN OldB.1.a Old: Kidney transplant - 1= YES
deceased donor 2= NO
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
240 7 7.3 PFKTDATE OldB.1b Old: Date of kidney 0.000= 0.000 years
transplant in duration of .
year from the baseline visit .
50.000= 50.000 years
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
247 7 7.3 PFMRKTDT OldB.1c Old: Date of most recent 0.000= 0.000 years
kidney transplant in duration .
of year from the baseline .
visit 50.000= 50.000 years
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
254 2 2.0 PFMMRKT B.1.c Date most recent transplant - 01= 01
month .
.
12= 12
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
256 2 2.0 PFDMRKT B.1.c Date most recent transplant - 01= 01
day .
.
31= 31
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
258 4 4.0 PFYMRKT B.1.c Date most recent transplant - 2005= 2005
year .
.
2029= 2029
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
262 2 2.0 PFKTSTAT B.1d Current clinical status of 1= The kidney finction is
kidney transplant good/excellent
3= The kidney function is OK
but (name of
participant) might
need another transplant in
the near future (in 1 year
or so)
2= The kidney function is not
working well and (name
of participant) is on
dialysis
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
264 2 2.0 PFDISCKT B.2 Discussed renal transplant 1= Yes
with nephrologist in past year 2= No
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
266 2 2.0 PFDISCLD B.3 Kidney transplant donor 1= YES
option - living 2= NO
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
268 2 2.0 PFDISCDD B.3 Kidney transplant donor 1= YES
option - deceased 2= NO
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
270 2 2.0 PFLISTDD B.4 Child has been listed for 1= Yes
deceased donor transplant 2= No
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
272 2 2.0 PFMWLIST B.4.a Date listed for deceased 01= 01
donor transplant - month .
.
12= 12
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
274 2 2.0 PFDWLIST B.4.a Date listed for deceased 01= 01
donor transplant - day .
.
31= 31
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
276 4 4.0 PFYWLIST B.4.a Date listed for deceased 2005= 2005
donor transplant - year .
.
2029= 2029
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
280 7 7.3 PFDTLIST OldB.4.a Old: Date listed for deceased 0.000= 0.000 years
donor transplant in duration .
of year from the baseline .
visit 50.000= 50.000 years
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
287 2 2.0 PF30TRMD C.1 Participant has taken 1= Yes
transplant-related medications 2= No
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
289 2 2.0 PFAZAT C.1.a Past 30 days - Azathioprine 1= Yes
(Imuran) 2= No
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
291 2 2.0 PFFQAZAT C.1.a.i Past 30 days - frequency 1= More than four times/day
Azathioprine (Imuran) 2= Four times/day (every 6
hours)
3= Three times/day (every 8
hours)
4= Twice/day (every 12 hours)
5= Once/day
6= Every other day
7= 2 times/week or 3 times/
week
8= Less than 2-3 times/week
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
293 2 2.0 PFCYCL C.1.b Past 30 days - Cyclosporine 1= Yes
(Gengraf, Neoral, Sandimmune) 2= No
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
295 2 2.0 PFFQCYCL C.1.b.i Past 30 days - frequency 1= More than four times/day
Cyclosporine (Gengraf, Neoral, 2= Four times/day (every 6
Sandimmune) hours)
3= Three times/day (every 8
hours)
4= Twice/day (every 12 hours)
5= Once/day
6= Every other day
7= 2 times/week or 3 times/
week
8= Less than 2-3 times/week
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
297 2 2.0 PFMYCO C.1.c Past 30 days - Mycophenolate 1= Yes
mofetil (Cellcept, Myfortic) 2= No
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
299 2 2.0 PFFQMYCO C.1.c.i Past 30 days - frequency 1= More than four times/day
Mycophenolate mofetil 2= Four times/day (every 6
(Cellcept, Myfortic) hours)
3= Three times/day (every 8
hours)
4= Twice/day (every 12 hours)
5= Once/day
6= Every other day
7= 2 times/week or 3 times/
week
8= Less than 2-3 times/week
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
301 2 2.0 PFPRED C.1.d Past 30 days - Prednisone, 1= Yes
Prednisolone, 2= No
Methylprednisolone -1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
303 2 2.0 PFFQPRED C.1.e.i Past 30 days - frequency 1= More than four times/day
Prednisone, Prednisolone, 2= Four times/day (every 6
Methylprednisolone hours)
3= Three times/day (every 8
hours)
4= Twice/day (every 12 hours)
5= Once/day
6= Every other day
7= 2 times/week or 3 times/
week
8= Less than 2-3 times/week
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
305 2 2.0 PFRAPA C.1.e Past 30 days - Rapamycin 1= Yes
2= No
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
307 2 2.0 PFFQRAPA C.1.e.i Past 30 days - frequency 1= More than four times/day
Rapamycin 2= Four times/day (every 6
hours)
3= Three times/day (every 8
hours)
4= Twice/day (every 12 hours)
5= Once/day
6= Every other day
7= 2 times/week or 3 times/
week
8= Less than 2-3 times/week
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
309 2 2.0 PFTACR C.1.f Past 30 days - Tacrolimus 1= Yes
(FK506, Prograf) 2= No
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
311 2 2.0 PFFQTACR C.1.f.i Past 30 days - frequency 1= More than four times/day
Tacrolimus (FK506, Prograf) 2= Four times/day (every 6
hours)
3= Three times/day (every 8
hours)
4= Twice/day (every 12 hours)
5= Once/day
6= Every other day
7= 2 times/week or 3 times/
week
8= Less than 2-3 times/week
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
313 2 2.0 PFTRSU C.1.g Past 30 days - Trimethoprim- 1= Yes
Sulfamethoxazole 2= No
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
315 2 2.0 PFFQTRSU C.1.g.i Past 30 days - frequency 1= More than four times/day
Trimethoprim-Sulfamethoxazole 2= Four times/day (every 6
hours)
3= Three times/day (every 8
hours)
4= Twice/day (every 12 hours)
5= Once/day
6= Every other day
7= 2 times/week or 3 times/
week
8= Less than 2-3 times/week
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
317 2 2.0 PFVALC C.1.h Past 30 days - Valcyte 1= Yes
(Valganciclovir) 2= No
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
319 2 2.0 PFFQVALC C.1.h.i Past 30 days - frequency 1= More than four times/day
Valcyte (Valganciclovir) 2= Four times/day (every 6
hours)
3= Three times/day (every 8
hours)
4= Twice/day (every 12 hours)
5= Once/day
6= Every other day
7= 2 times/week or 3 times/
week
8= Less than 2-3 times/week
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
321 2 2.0 PFOTRM C.1.i Past 30 days - Other 1= Yes
transplant related medication 2= No
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
323 25 $ PFSPOTRM C.1.i Specify other transplant- Character
related medication
348 2 2.0 PFFQOTRM C.1.i.i Past 30 days - frequency 1= More than four times/day
other transplant related 2= Four times/day (every 6
medication hours)
3= Three times/day (every 8
hours)
4= Twice/day (every 12 hours)
5= Once/day
6= Every other day
7= 2 times/week or 3 times/
week
8= Less than 2-3 times/week
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
350 2 2.0 PFEVDIAL D.1 Child has been on dialysis 1= Yes
2= No
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
352 2 2.0 PFDLBRTH OldB.5.B5a Old: Child was on dialysis at 1= Yes
birth 2= No
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
354 2 2.0 PFDLTYPE D.1.D1a Type of dialysis used most 1= Hemodialysis (cleansing
recently the blood outside of the
body)
2= Peritoneal Dialysis
(cleansing the blood using
his/her own body tissues
inside the body)
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
356 7 7.3 PFMRDLDT OldB.5.B5b Old: Date most recent 0.000= 0.000 years
dialysis initiated in .
duration of year from the .
baseline visit 50.000= 50.000 years
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
363 7 7.3 PFRDIADTE Date of most recent regular 0.000= 0.000 years
dialysis in duration of year .
from the baseline visit .
50.000= 50.000 years
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
370 2 2.0 PFMRRDLY D.1.b Date most recent regular 01= 01
dialysis started - month .
.
12= 12
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
372 2 2.0 PFDRRDLY D.1.b Date most recent regular 01= 01
dialysis started - day .
.
31= 31
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
374 4 4.0 PFYRRDLY D.1.b Date most recent regular 2005= 2005
dialysis started - year .
.
2029= 2029
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
378 2 2.0 PFMMRDLY OldB.5.b Old: Date most recent 01= 01
dialysis started - month .
.
12= 12
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
380 2 2.0 PFDMRDLY OldB.5.b Old: Date most recent 01= 01
dialysis started - day .
.
31= 31
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
382 4 4.0 PFYMRDLY OldB.5.b Old: Date most recent 2005= 2005
dialysis started - year .
.
2029= 2029
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
386 7 7.3 PFDIADTE OldB.5.c Old: Date dialysis initiated 0.000= 0.000 years
in duration of year from the .
baseline visit .
50.000= 50.000 years
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
393 2 2.0 PFCURDIA D.1.D1c Child currently on dialysis/ 1= Yes
receiving regular dialysis 2= No
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
395 2 2.0 PFDISCDL D.2 Discussed dialysis with 1= Yes
nephrologist in past year 2= No
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
397 2 2.0 PFDLMODL D.3 Dialysis modality recommended/ 1= Hemodialysis (cleansing
planned the blood outside of the
body)
2= Peritoneal Dialysis
(cleansing the blood using
his/her own body tissues
inside the body)
3= No Recommendation/
Preference
9= No decision yet
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
399 2 2.0 PFHGRADC E.1 Highest grade completed by 0= 0
participant .
.
20= 20
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
401 2 2.0 PFADLTPH E.2 Number of adults in primary 1= 1
household .
.
10= 10
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
403 2 2.0 PFBMOMPH E.3.a Primary household - birth 1= YES
mother 2= NO
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
405 2 2.0 PFBDADPH E.3.b Primary household - birth 1= YES
father 2= NO
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
407 2 2.0 PFAMOMPH E.3.c Primary household - step/ 1= YES
adoptive mother 2= NO
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
409 2 2.0 PFADADPH E.3.d Primary household - step/ 1= YES
adoptive father 2= NO
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
411 2 2.0 PFPARTPH E.3.e Primary household - 1= YES
participant 2= NO
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
413 2 2.0 PFSPDPPH E.3.f Primary household - spouse/ 1= YES
domestic partner 2= NO
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
415 2 2.0 PFOTHRPH E.3.g Primary household - other 1= YES
2= NO
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
417 25 $ PFSPOAPH E.3.g.i Specify other adult living in Character
primary household
442 2 2.0 PFCHLDPH E.4 Number of people under 18 in 1= 1
primary household .
.
10= 10
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
444 2 2.0 PFBCLDPH E.5.a Primary household - 1= YES
biological child of 2= NO
participant -1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
446 2 2.0 PFSCLDPH E.5.b Primary household - step/ 1= YES
adopted child of participant 2= NO
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
448 2 2.0 PFSIBLPH E.5.c Primary household - sibling 1= YES
2= NO
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
450 2 2.0 PFCPRTPH E.5.d Primary household - child 1= YES
participant 2= NO
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
452 2 2.0 PFCOTHPH E.5.e Primary household - child 1= YES
other 2= NO
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
454 25 $ PFSPOCPH E.5.e.i Specify other child living in Character
primary household
479 2 2.0 PFPESWFT E.6.a Participant current 1= YES
employment status - working 2= NO
full-time -1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
481 2 2.0 PFPESWPT E.6.b Participant current 1= YES
employment status - working 2= NO
part-time -1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
483 2 2.0 PFPESDIS E.6.c Participant current 1= YES
employment status - 2= NO
disability income -1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
485 2 2.0 PFPESSTD E.6.d Participant current 1= YES
employment status - student 2= NO
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
487 2 2.0 PFPESUSW E.6.e Participant current 1= YES
employment status - 2= NO
unemployed seeking work -1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
489 2 2.0 PFPESUNS E.6.f Participant current 1= YES
employment status - 2= NO
unemployed not seeking work -1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
491 2 2.0 PFCSFEMP E.6..i Child is self-employed 1= Yes
2= No
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
493 2 2.0 PFMENSES E.7 Participant has had her menses 1= Yes
2= No
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
495 2 2.0 PFMENAGE E.7.a Age at time of first menses 8= 8
.
.
17= 17
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
497 2 2.0 PF7FATIG E.8 Past 7 days symptom - fatigue 1= Never
2= Rarely
3= Sometimes
4= Often
5= Always
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
499 2 2.0 PF7TTHNK E.9 Past 7 days symptom - too 1= Never
tired to think clearly 2= Rarely
3= Sometimes
4= Often
5= Always
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
501 2 2.0 PF7ENRGY E.10 Past 7 days symptom - energy 1= Never
2= Rarely
3= Sometimes
4= Often
5= Always
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
503 2 2.0 PF7QOL E.11 Past 7 days symptom - quality 1= 1
of life .
.
10= 10
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
505 2 2.0 PFPYHCPN E.12 Past year - seen healthcare 1= Yes
providerephrologist 2= No
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
507 75 $ PFHCPNRN E.13.a Specify reason not seen Character
health care provider/
nephrologist
582 2 2.0 PFHOSP12 E.13 Participant has been 1= Yes
hospitalized in past year 2= No
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
584 2 2.0 PFHSPNUM E.13.a Number of times participant 1= 1
hospitalized in past year .
.
30= 30
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
586 2 2.0 PFBLDINF E.14 Participant has had bladder 1= YES
infections/UTIs 2= NO
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
588 2 2.0 PFUTINUM E.14.a Number of times participant 1= 1
had UTI in past year .
.
30= 30
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
590 2 2.0 PFHLTHIN E.15 Participant has health 1= Yes
insurance 2= No
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
592 75 $ PFHINSRN E.15.a Specify reason no health Character
insurance
667 2 2.0 PFLSHLIN E.16a Length of time since child 1= 6 months or less
had health insurance 2= More than 6 months, but no
more than 1 year ago
3= More than 1 year, but no
more than 3 years ago
4= More than 3 years
5= Never had health insurance
coverage
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
669 2 2.0 PFPYHLIN E.16b Past year any time child had 1= Yes
no health insurance 2= No
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
671 3 3.0 PFPYLWHI E.16c Past year length of time 1= 1
child was without insurance .
.
365= 365
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
674 2 2.0 PFPYLMWD E.16.c Past year length of time 1= Months
participant was without 2= Weeks
insurance - months/weeks/days 3= Days
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
676 2 2.0 PFPYMI F.1 Past year = participant has 1= YES
had MI 2= NO
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
678 2 2.0 PFSTROKE F.2 Past year = participant has 1= YES
had stroke 2= NO
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
680 2 2.0 PFPYANG F.3 Past year = participant 1= YES
diagnosed with angina 2= NO
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
682 2 2.0 PFPYIHR F.4 Past year = participant 1= YES
diagnosed with irregular 2= NO
heart rhythm -1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
684 2 2.0 PF30BPMD G.1 Participant has taken BP meds 1= Yes
in past 30 days 2= No
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
686 2 2.0 PFNMBPMD G.2 Number of different BP meds 1= 1
participant has taken in past .
30 days .
10= 10
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
688 2 2.0 PFACEARB G.3 Participant is taking ACE/ARBs 1= Yes
2= No
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
690 2 2.0 PFNMACAR G.4 Number of different ACE/ARBs 1= 1
participant is taking .
.
10= 10
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
692 2 2.0 PFTADLTC H.1 Participant has transitioned 1= Yes
to adult care 2= No
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
694 2 2.0 PFRTADLT H.2 Rating of transition to adult 1= 1
care .
.
5= 5
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
696 75 $ PFSPRTAC H.2.a Specify reason transition to Character
adult care poor/hard
771 5 $ PFCURZIP OldC.1 Old: Current zip code of Character
child's primary household
776 2 2.0 PFSCHOOL OldC.2 Old: Child's school 1= Yes
2= No
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
778 3 3.0 PFMISSDY OldC.3 Old: Child missed school r/t 0= 0
illness - days .
.
90= 90
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
781 2 2.0 PFWRKOUT OldC.4 Old: Child works outside of 1= Yes
home 2= No
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
783 2 2.0 PFCHDEMP OldC.4 Old: Current employment 1= Working full-time (35
status of child hours or more per week)
2= Working part-time (less
than 35 hours per week)
3= Unemployed but seeking work
4= Unemployed not seeking work
5= Student
6= Retired
7= Disability
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
785 2 2.0 PFMISSWK OldC.5 Old: Child missed work r/t 0= 0
illness - days .
.
90= 90
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
787 2 2.0 PFURPROC OldD.1 Old: Child has had urologic 1= Yes
procedure to treat kidney 2= No
problem -1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
789 2 2.0 PFDIABTS OldD.2.a Old: Child has Diabetes 1= YES
Mellitus 2= NO
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
791 2 2.0 PF_HBP OldD.3.a Old: Child has Hypertension 1= YES
2= NO
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
793 2 2.0 PFBPSTAT OldD.3.a.i Old: Status of hypertension 1= Continued problem
2= Resolved problem
3= Controlled with medication
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
795 2 2.0 PF_CHF OldD.3.b Old: Child has congestive 1= YES
heart failure 2= NO
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
797 2 2.0 PF_LVH OldD.3.d Old: Child has had left 1= YES
ventricular hypertrophy 2= NO
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
799 2 2.0 PFKDSTNE OldD.4.b Old: Child has passage of 1= YES
kidney stone 2= NO
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
801 2 2.0 PFNRSEIZ OldD.5.a Old: Neurological - seizures/ 1= YES
convulsions 2= NO
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
803 2 2.0 PFRTHLTH OldE.1 Old: Child's health in past 1= Very Good
year compared to peers 2= Good
3= Fair
4= Poor
5= Very Poor
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
805 2 2.0 PFAPPETI OldE.2 Old: Child's appetite in past 1= Very Good
week 2= Good
3= Fair
4= Poor
5= Very Poor
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
807 2 2.0 PFILLPWK OldE.2.a Old: Child had acute illness 1= Yes
during past week 2= No
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
809 2 2.0 PFILLDYS OldE.2.b Old: Number of days ill 1= 1
during past week .
.
7= 7
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
811 2 2.0 PFRCCLHC OldF.1.a Old: Child received medical 1= YES
care - clinic or health center 2= NO
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
813 2 2.0 PFRCPRDO OldF.1.b Old: Child received medical 1= YES
care - private doctor's office 2= NO
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
815 2 2.0 PFRCHOD OldF.1.c Old: Child received medical 1= YES
care - hospital outpatient 2= NO
department -1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
817 2 2.0 PFRCEMER OldF.1.d Old: Child received medical 1= YES
care - emergency room 2= NO
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
819 2 2.0 PFRCENUM OldF.1.d.1 Old: Number of times received 1= 1
care in ER past year .
.
30= 30
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
821 2 2.0 PFRCOTHR OldF.1.e Old: Child received medical 1= YES
care - other location 2= NO
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
823 50 $ PFRCOTSP OldF.1.e.1 Old: Specify other health Character
care location
873 3 3.0 PFNUMHCP OldF.2 Old: Number of times child 0= 0
saw health care provider in .
past year .
30= 30
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
876 2 2.0 PFNUMIMC OldF.3 Old: Number of times child 0= 0
saw health care provider in .
past year for immediate care .
30= 30
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
878 2 2.0 PFSMEHCP OldF.4 Old: Child's usually saw same 1= Yes
health care provider 2= No
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
880 2 2.0 PFPSYC12 OldF.6 Old: Child saw mental health 1= Yes
professional in past year 2= No
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
882 2 2.0 PFDENT12 OldF.7 Old: Child saw dentist in 1= Yes
past year 2= No
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
884 2 2.0 PFNAUSEA OldG.1 Old: Number of days nausea 0= 0
.
.
31= 31
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
886 2 2.0 PFNAUSSV OldG.1.a Old: Severity of nausea 1= Mild
2= Moderate
3= Severe
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
888 2 2.0 PFVOMIT OldG.2 Old: Number of days vomiting 0= 0
.
.
31= 31
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
890 2 2.0 PFVOMTSV OldG.2.a Old: Severity of vomiting 1= Mild
2= Moderate
3= Severe
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
892 2 2.0 PFCONSTI OldG.3 Old: Number of days 0= 0
constipation .
.
31= 31
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
894 2 2.0 PFCONSSV OldG.3.a Old: Severity of constipation 1= Mild
2= Moderate
3= Severe
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
896 2 2.0 PFNUMBHF OldG.4 Old: Number of days numbness 0= 0
hands/feet .
.
31= 31
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
898 2 2.0 PFNUMBSV OldG.4.a Old: Severity of numbness in 1= Mild
hands/feet 2= Moderate
3= Severe
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
900 2 2.0 PFBLRVIS OldG.5 Old: Number of days blurred 0= 0
vision .
.
31= 31
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
902 2 2.0 PFBLVSSV OldG.5.a Old: Severity of blurred 1= Mild
vision 2= Moderate
3= Severe
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
904 2 2.0 PFLAPPET OldG.6 Old: Number of days loss of 0= 0
appetite .
.
31= 31
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
906 2 2.0 PFLAPPSV OldG.6.a Old: Severity of loss of 1= Mild
appetite 2= Moderate
3= Severe
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
908 2 2.0 PFINCAPP OldG.7 Old: Number of days increased 0= 0
appetite .
.
31= 31
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
910 2 2.0 PFINAPSV OldG.7.a Old: Severity of increased 1= Mild
appetite 2= Moderate
3= Severe
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
912 2 2.0 PFINWGHT OldG.8 Old: Number of days weight 0= 0
increase .
.
31= 31
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
914 2 2.0 PFINWTSV OldG.8.a Old: Severity of weight 1= Mild
increase 2= Moderate
3= Severe
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
916 2 2.0 PFSWLING OldG.9 Old: Number of days swelling 0= 0
.
.
31= 31
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
918 2 2.0 PFSWLGSV OldG.9.a Old: Severity of swelling 1= Mild
2= Moderate
3= Severe
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
920 2 2.0 PFWEAKNS OldG.10 Old: Number of days weakness 0= 0
.
.
31= 31
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
922 2 2.0 PFWEAKSV OldG.10.a Old: Severity of weakness 1= Mild
2= Moderate
3= Severe
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
924 2 2.0 PFFALSLP OldG.11 Old: Number of days falling 0= 0
asleep during day .
.
31= 31
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
926 2 2.0 PFFASLSV OldG.11.a Old: Severity of falling 1= Mild
asleep during day 2= Moderate
3= Severe
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
928 2 2.0 PFLEGPN OldH.12 Old: Number of days leg pain 0= 0
.
.
31= 31
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
930 2 2.0 PFLGPNSV OldH.12.a Old: Severity of leg pain 1= Mild
2= Moderate
3= Severe
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
932 2 2.0 PFRXMEDS OldH.1 Old: Child has taken meds in 1= Yes
past 30 days 2= No
-1= NA (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
934 2 2.0 PFTOTMDS OldH.3 Old: Total number of 0= 0
medications reported in s1 .
.
30= 30
-1= N.A. (Skipped)
-7= Refusal
-8= Don't know
-9 or Blank= Missing
936 1 $ ESTAT Edit status A.0 D= Dirty
C= Clean
P= Pending
937 6 $ VERSION Version number of data P01= Version 01
.
.
P99= Version 99