CODEBOOK V2018: Prospective Cohort Study of Kidney Disease in Children 7-28-2020 PFU01 - Phone Follow-Up (Repeating Segment) S1 Start ____Field____ Section/ Column Len Format Variable Question Description Code ------ --- --------- ---------------- ------------ ------------------------------ ------------------------------ 1 6 6.0 CASEID A.0 Participant ID 100000= 100000 . . 699999= 699999 7 3 3.0 VISIT A.0 Old: Visit # 000= 000 . . 990= 990 10 6 6.0 PFDRCODE OldH.2 Old: Drug code 000100= 000100 . . 999999= 999999 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 16 35 $ PFMEDICA OldH.2 Old: Specify medication Character 51 2 2.0 PFFORM OldH.2 Old: Form of drug 1= Pill/Tablet/Patch/Powder 2= Drop 3= Inhaler/Spray 4= Nebulizer 5= Liquid (syrup/gel/cream/ lotion/injections) 6= Rectal Formulation -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 53 8 8.2 PFMDDOSE OldH.2 Old: Dose of medication 0.00= 0.00 . . 5000.00= 5000.00 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 61 2 2.0 PFMDUNIT OldH.2 Old: Units for dose 1= mg 2= mcg 3= ml/cc 4= tsp 5= tbsp 6= oz 7= drop 8= spray/inhaler 9= vitamins 10= g 11= % 98= other -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 63 35 $ PFUNITSP OldH.2 Old: Specify other units of Character medication 98 2 2.0 PFMDFREQ OldH.2 Old: Frequency 1= q4 (every 4 hours) 2= q6 (every 6 hours or 4 times/day) 3= q8/tid (every 8 hours or 3 times/day) 4= q12/bid (every 12 hours or twice/day) 5= q24/qday (every day or once/day) 6= qod (every other day) 10= tiweek (3 times/week) 14= biweek (2 times/week) 7= qweek (every week) 11= q2week (every 2 weeks) 12= q3week (every 3 weeks) 13= qmonth (every month) 9= PRN (as needed) 8= other -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 100 35 $ PFFREQSP OldH.2 Old: Specify other frequency Character of medication 135 2 2.0 PFMISS30 OldH.2 Old: Times missed taking drug 0= 0 in past 30 days . . 99= 99 -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 137 2 2.0 PFMISS7D OldH.2 Old: Times missed taking drug 0= 0 in past 7 days . . 99= 99 -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 139 2 2.0 PFRSNMSD OldH.2 Old: Reason missed drug in 1= Meds cause side effects past 7 days 2= Hard to remember to give meds 3= Hard to get to pharmacy to pick up meds 4= Hard to open 5= Hard to get refill on time 6= Hard to remember to give on weekends 7= Hard to pay for meds 8= Meds taste bad 9= Painful to take meds -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 141 1 $ ESTAT Edit status A.0 D= Dirty C= Clean P= Pending 142 6 $ VERSION Version number of data P01= Version 01 . . P99= Version 99