CODEBOOK V2018: Prospective Cohort Study of Kidney Disease in Children 7-29-2020 PFU02 - Follow-Up Site Questionnaire Start ____Field____ Section/ Column Len Format Variable Question Description Code ------ --- --------- ---------------- ------------ ------------------------------ ------------------------------ 1 6 6.0 CASEID A.0 Participant ID 100000= 100000 . . 699999= 699999 7 3 3.0 VISIT A.0 Old: Visit # 000= 000 . . 990= 990 10 2 2.0 P2PROTCL A.0 Protocol type/PFU01 method 1= Phone/in-person interview used 2= Online survey -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 12 2 2.0 P2PIPN A.0 PIP # 00= 00 . . 10= 10 14 2 2.0 P2WEBN A.0 Web # 00= 00 . . 10= 10 16 3 $ P2INITL A.0 Initials of person completing Character form 19 7 7.3 P2DTCOMP A.0 Date form completed in 0.000= 0.000 years duration of year from the . baseline visit . 50.000= 50.000 years -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 26 8 $ VERSP2 A.0 Form version 0.000= 0.000 years . . 50.000= 50.000 years 34 2 2.0 P2SACS A.0 Participant seen at clinical 1= Yes site 2= No -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 36 50 $ P2SPLOCS A.0 Specify location at which Character participant is seen 86 2 2.0 P2RTSTAV A.1 Serum renal panel test 1= Yes results available 2= No, specify reason below -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 88 25 $ P2RRNAVL A.1.i Specify reason serum renal Character panel test results not available 113 7 7.3 P2RDTESM A.2 Date sample drawn for serum 0.000= 0.000 years renal panel tests in duration . of year from the baseline . visit 50.000= 50.000 years -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 120 3 3.0 P2SODIUM A.2.a Result: Sodium (MEQ/L) or 120= 120 (mmol/L) . . 160= 160 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 123 5 5.2 P2POTAS A.2.b Result: Potassium (MEQ/L) or 3.0= 3.0 (mmol/L) . . 6.1= 6.1 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 128 3 3.0 P2CHLOR A.2.c Result: Chloride (MEQ/L) or 93= 93 (mmol/L) . . 117= 117 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 131 2 2.0 P2_CO2 A.2.d Result: Carbon dioxide (MEQ/ 15= 15 L) or (mmol/L) . . 40= 40 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 133 3 3.0 P2_BUN A.2.e Result: Urea Nitrogen (BUN) 7= 7 (mg/dL) . . 120= 120 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 136 3 3.0 P2_GLUC A.2.f Result: Glucose (mg/dL) 50= 50 . . 600= 600 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 139 4 4.1 P2_CAL A.2.g Result: Calcium (mg/dL) 6.0= 6.0 . . 13.0= 13.0 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 143 4 4.1 P2_PHOS A.2.h Result: Phosphate (mg/dL) 1.0= 1.0 . . 20.0= 20.0 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 147 4 4.1 P2_ALB A.2.i Result: Albumin (g/dL) 3.0= 3.0 . . 6.0= 6.0 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 151 5 5.2 P2URICAC A.2.j Result: Uric Acid (Urate) (mg/ 3.1= 3.1 dL) . . 9.2= 9.2 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 156 5 5.2 P2SERCRE A.2.k Result: Serum Creatinine - 0.10= 0.10 (mg/dL) - measured locally/ . check assay . 5.00= 5.00 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 161 2 2.0 P2SCASSY A.2.k.1 Assay used to measure serum 1= Enzymatic creatinine 2= Modified Jaffe Reaction 3= Other -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 163 25 $ P2SCLAB A.2.k.2 Specify lab used to measure Character serum creatinine 188 2 2.0 P2BTSTAV A.3 CBC test results available 1= Yes 2= No, specify reason below -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 190 25 $ P2BRNAVL A.3.a Specify reason CBC Blood test Character results not available 215 7 7.3 P2BDTESM A.4 Date sample drawn for CBC 0.000= 0.000 years tests in duration of year . from the baseline visit . 50.000= 50.000 years -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 222 5 5.0 P2_WBC A.4.a Result: Leukocyte Count (cu 1000= 1000 mm) . . 30000= 30000 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 227 5 5.2 P2_RBC A.4.b Result: Erythrocyte Count (M/ 4.20= 4.20 cu mm) or (x10-6 uL) . . 9.99= 9.99 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 232 3 3.0 P2_PLT A.4.c Result: Platelet Count (K/cu 100= 100 mm) or (x10-3 uL) . . 500= 500 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 235 4 4.1 P2_HGB A.4.d Result: Hemoglobin (g/dL) 10.0= 10.0 . . 16.0= 16.0 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 239 4 4.1 P2_HCT A.4.e Result: PCV - Hematocrit (%) 30.0= 30.0 . . 50.0= 50.0 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 243 4 4.1 P2_MCH A.4.f Result: Mean Corpuscular 23= 23 Hemoglobin (pg/cell) . . 35= 35 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 247 4 4.1 P2_MCHC A.4.g Result: MCH Concentration (g/ 30.0= 30.0 dL) . . 40.0= 40.0 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 251 5 5.1 P2_MCV A.4.h Result: MC Volume (fL) 74.0= 74.0 . . 110.0= 110.0 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 256 4 4.1 P2_RCD A.4.i Result: Red Cell Distribution 9.0= 9.0 Width (%) . . 20.0= 20.0 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 260 2 2.0 P2CTSTAV OldA.5 Old: Cystatin C test results 1= Yes available 2= No, specify reason below -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 262 25 $ P2CRNAVL OldA.5.a Old: Specify reason Cystatin Character C test results not available 287 7 7.3 P2CDTESM OldA.6 Old: Date sample drawn for 0.000= 0.000 years Cystatin C tests in duration . of year from the baseline . visit 50.000= 50.000 years -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 294 5 5.2 P2_CYSTC OldA.6.a Old: Result: Cystatin C (mg/L) 1.0= 1.0 . . 9.99= 9.99 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 299 2 2.0 P2CCASSY OldA.6.a.1 Old: Assay used to measure 1= Turbidometry (DAKO) Cystatin C 2= Nephelometry (Dade Behring) 3= Other -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 301 25 $ P2CCLAB OldA.6.a.2 Old: Specify lab used to Character measure Cystatin C 326 2 2.0 P2ITSTAV A.5 Iron tests results available 1= Yes 2= No, specify reason below -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 328 25 $ P2IRNAVL A.5.a Specify reason iron tests Character results not available 353 7 7.3 P2IDTESM A.6 Date sample drawn for iron 0.000= 0.000 years tests in duration of year . from the baseline visit . 50.000= 50.000 years -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 360 3 3.0 P2TSAT A.6.a Result: Transferrin 15= 15 Saturation (TSAT) (%) . . 55= 55 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 363 3 3.0 P2TRFERR OldA.8.b Old: Result: Transferrin 202= 202 . . 336= 336 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 366 4 4.0 P2FERRTN OldA.8.c Old: Result: Ferritin 10= 10 . . 322= 322 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 370 4 4.0 P2SRIRON A.6.b Serum Iron (ug/dL) 38= 38 . . 159= 159 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 374 3 3.0 P2LBPSYS B.1a Clinical blood pressure - 20= 20 systolic . . 240= 240 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 377 3 3.0 P2LBPDIA B.1a Clinical blood pressure - 20= 20 diastolic . . 200= 200 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 380 7 7.3 P2BPDTE B.1.b Date clinical BP was measured 0.000= 0.000 years in duration of year from the . baseline visit . 50.000= 50.000 years -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 387 2 2.0 P2BPMTHD B.1.c Method used to obtain BP 1= Manual 2= Automatic -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 389 5 5.1 P2WGT1 B.2.a Child weight (kg) 3.0= 3.0 . . 175.0= 175.0 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 394 7 7.3 P2WGTDTE B.2.b Date weight measured in 0.000= 0.000 years duration of year from the . baseline visit . 50.000= 50.000 years -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 401 5 5.1 P2HGT1 B.3.a Child height (cm) 60.0= 60.0 . . 230.0= 230.0 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 406 7 7.3 P2HGTDTE B.3.b Date height measured in 0.000= 0.000 years duration of year from the . baseline visit . 50.000= 50.000 years -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 413 2 2.0 P2KTRANS C.1 Participant has undergone 1= Yes kidney transplant 2= No -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 415 2 2.0 P2NMKDTP C.2 Number of kidney transplants 1= One 2= Two 3= Three or more -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 417 7 7.3 P2KTRDTE OldC.2 Old: Date of kidney 0.000= 0.000 years transplant in duration of . year from the baseline visit . 50.000= 50.000 years -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 424 7 7.3 P2MRKTDT C.3 Date of most recent kidney 0.000= 0.000 years transplant in duration of . year from the baseline visit . 50.000= 50.000 years -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 431 2 2.0 P2KTSTAT C.4 Clinical status of kidney 1= Functioning graft transplant 2= Graft failure -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 433 2 2.0 P2DIAPYR OldD.1 Old: Patient initiated 1= Yes dialysis in past year 2= No -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 435 2 2.0 P2EVRDIA D.1 Participant ever on dialysis 1= Yes 2= No -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 437 2 2.0 P2INDTYP D.2 Type of dialysis used 1= Hemodialysis initially 2= Peritoneal dialysis -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 439 7 7.3 P2INDDT D.2.a Date first dialysis initiated 0.000= 0.000 years in duration of year from the . baseline visit . 50.000= 50.000 years -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 446 2 2.0 P2SAMEDT OldD.3 Old: Initial dialysis same as 1= Yes most recent 2= No -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 448 7 7.3 P2MRRDDT D.3 Date most recent regular 0.000= 0.000 years dialysis started in duration . of year from the baseline . visit 50.000= 50.000 years -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 455 2 2.0 P2RCDTYP D.4 Type of dialysis used most 1= Hemodialysis recently 2= Peritoneal dialysis -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 457 7 7.3 P2RCDDT OldD.4.a Old: Date most recent 0.000= 0.000 years dialysis started in duration . of year from the baseline . visit 50.000= 50.000 years -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 464 2 2.0 P2CURDIA D.5 Child currently on dialysis 1= Yes 2= No -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 466 2 2.0 P2PYABPM E.1 Participant has had an ABPM 1= Yes in past year 2= No -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 468 7 7.3 P2DTABPM E.2 Date when ABPM was worn in 0.000= 0.000 years duration of year from the . baseline visit . 50.000= 50.000 years -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 475 3 3.0 P224SYS E.3.a 24 hour BP - systolic 40= 40 . . 220= 220 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 478 3 3.0 P224SYSL E.3.a.i 24 hour BP - systolic load 0= 0 . . 999= 999 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 481 3 3.0 P224DIA E.3.b 24 hour BP - diastolic 40= 40 . . 220= 220 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 484 3 3.0 P224DIAL E.3.b.i 24 hour BP - diastolic load 0= 0 . . 999= 999 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 487 3 3.0 P2DASYS E.4.a Day/Awake BP - systolic 40= 40 . . 220= 220 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 490 3 3.0 P2DASYSL E.4.a.i Day/Awake BP - systolic load 0= 0 . . 999= 999 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 493 3 3.0 P2DADIA E.4.b Day/Awake BP - diastolic 40= 40 . . 220= 220 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 496 3 3.0 P2DADIAL E.4.b.i Day/Awake BP - diastolic load 0= 0 . . 999= 999 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 499 3 3.0 P2NSSYS E.5.a Night/Sleep BP - systolic 40= 40 . . 220= 220 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 502 3 3.0 P2NSSYSL E.5.a.i Night/Sleep BP - systolic load 0= 0 . . 999= 999 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 505 5 5.2 P2NSSYSD E.5.a.ii Night/Sleep BP - systolic 0= 0 dipping . . 9.99= 9.99 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 510 3 3.0 P2NSDIA E.5.b Night/Sleep BP - diastolic 40= 40 . . 220= 220 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 513 3 3.0 P2NSDIAL E.5.b.i Night/Sleep BP - diastolic 0= 0 load . . 999= 999 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 516 5 5.2 P2NSDIAD E.5.b.ii Night/Sleep BP - diastolic 0= 0 dipping . . 9.99= 9.99 -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 521 2 2.0 P2CURHMD OldD.3 Old: Patient currently 1= Yes undergoing hemodialysis 2= No -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 523 7 7.3 P2HMDDTE OldD.3.a Old: Date hemodialysis 0.000= 0.000 years initiated in duration of year . from the baseline visit . 50.000= 50.000 years -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 530 2 2.0 P2CURPTD OldD.4 Old: Patient currently 1= Yes undergoing peritoneal dialysis 2= No -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 532 7 7.3 P2PTDDTE OldD.4.a Old: Date peritoneal dialysis 0.000= 0.000 years initiated in duration of year . from the baseline visit . 50.000= 50.000 years -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 539 2 2.0 P2PTDTYP OldD.4.b Old: Type of peritoneal 1= Continuous Ambulatory dialysis Peritoneal Dialysis 2= Automatic/Continuous Cycling Peritoneal Dialysis -1= NA (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 541 1 $ ESTAT Edit status A.0 D= Dirty C= Clean P= Pending 542 6 $ VERSION Version number of data P01= Version 01 . . P99= Version 99