CODEBOOK V2018: Prospective Cohort Study of Kidney Disease in Children 7-28-2020 WFU01 - Post-CKiD Study Web-based Follow-Up Interview Start ____Field____ Section/ Column Len Format Variable Question Description Code ------ --- --------- ---------------- ------------ ------------------------------ ------------------------------ 1 6 6.0 CASEID A.0 Participant ID 100000= 100000 . . 699999= 699999 7 7 7.3 GHDOB C.1 Child's year of birth 1988= 1988 . . 2014= 2014 -9= Missing -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 14 8 $ VERSPF A.0 Form version 04/01/11= 04/01/11 . . 12/31/18= 12/31/18 22 15 $15. LANGUAGE Interview Language Character 37 7 7.3 PFDTSTAT A.1 Date of status determination 11/01/2013= 11/01/2013 in duration of year from the . baseline visit . 12/31/2014= 12/31/2014 -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 44 2 2.0 PFEVKDTP B.1 Child has had kidney 1= Yes transplant 2= No -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 46 2 2.0 PFNMKDTP B.1a Number of kidney transplants 1= One 2= Two 3= Three or more -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 48 2 2.0 PFKTDONR B.1b Kidney transplant - type of 1= Living donor - Related donor 2= Living donor - Not related 3= Deceased donor -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 50 7 7.3 PFMRKTDT Date of kidney transplant in 0.000= 0.000 years duration of year from the . baseline visit . 50.000= 50.000 years -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 57 2 2.0 PFMMRKT Month of kidney transplant 01= January . . 12= December -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 59 2 2.0 PFDMRKT Day of kidney transplant 01= 01 . . 31= 31 -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 61 4 4.0 PFYMRKT Year of kidney transplant 2007= 2007 . . 2014= 2014 -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 65 2 2.0 PFDISCKT B.2 Discussed renal transplant 1= Yes with nephrologist in past year 2= No -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 67 2 2.0 PFDISCLD B.3 Kidney transplant donor 1= YES option - living 2= NO -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 69 2 2.0 PFDISCDD B.3 Kidney transplant donor 1= YES option - deceased 2= NO -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 71 2 2.0 PFLISTDD B.4 Child has been listed for 1= Yes deceased donor transplant 2= No -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 73 7 7.3 PFDTLIST B.4.a Date listed for deceased 0.000= 0.000 years donor transplant in duration . of year from the baseline . visit 50.000= 50.000 years -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 80 2 2.0 PFMWLIST Month of listed for deceased 01= January donor transplant . . 12= December -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 82 2 2.0 PFDWLIST Day of listed for deceased 01= 01 donor transplant . . 31= 31 -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 84 4 4.0 PFYWLIST Year of listed for deceased 2007= 2007 donor transplant . . 2014= 2014 -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 88 2 2.0 PFEVDIAL B.5 Child has been on dialysis 1= Yes 2= No -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 90 2 2.0 PFDLTYPE B.5.B5b Type of dialysis used most 1= Hemodialysis recently 2= Peritoneal Dialysis -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 92 7 7.3 PFMRDLDT B.5.B5c Date most recent dialysis 0.000= 0.000 years initiated in duration of year . from the baseline visit . 50.000= 50.000 years -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 99 2 2.0 PFMMRDLY Month of most recent dialysis 01= January . . 12= December -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 101 2 2.0 PFDMRDLY Day of most recent dialysis 01= 01 . . 31= 31 -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 103 4 4.0 PFYMRDLY Year of most recent dialysis 2007= 2007 . . 2014= 2014 -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 107 2 2.0 PFCURDIA B.5d.B5d Child currently on dialysis 1= Yes 2= No -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 109 2 2.0 PFDISCDL B.6 Discussed dialysis with 1= Yes nephrologist in past year 2= No -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 111 2 2.0 PFDLMODL B.7 Dialysis modality recommended/ 1= Hemodialysis preferred 2= Peritoneal Dialysis 3= No Recommendation/ Preference -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 113 2 2.0 PFKTSTAT B.1d Current clinical status of 1= Functioning Graft kidney transplant 2= Graft Failure -1= N.A. (Skipped) -7= Refusal -8= Don't know -9 or Blank= Missing 115 6 $ VERSION Version number of data P01= Version 01 . . P99= Version 99